Inner Warrior

Hello. Hi. It’s me. I know…quite the lengthy absence, right? Let’s just say life happened and I needed a break from spilling my soul and focusing on my syndrome. Oh, and I also wrote a second book during this time, so I was a bit preoccupied with a different kind of writing. I, for one,…

Finding My Craniofacial Tribe

I was born different. There’s no denying that. Maybe it’s not as noticeable now, but the truth is I wasn’t like all of my peers. Not completely anyways. I had appointments with reconstructive surgeons. I received copious amounts of stares out in public. And I knew the ins and outs of my local children’s hospital.…

How To Ask Me About My Unique Appearance

There are many reasons why I write: to tell my unfiltered story, to bond with others dealing with craniofacial differences, and to educate those who are not. I have always wished that strangers knew more about Treacher Collins syndrome so they could see me the way I see myself. I think people forget that I…

I am in Control

I often wish I were quick-witted. I wish I knew what to say the very moment it needed to be said. For instance, the other night in an elevator a preteen was standing across from me, noticed something weird about my face, and ran over to her friend to whisper in her ear. Her friend…

When a Perfectionist Writes a Book

It’s here! It’s finally here! It’s been a year since I found out I would be writing a book and having it published, but in many ways, it feels like I’ve been waiting for this day my entire life. I don’t necessarily believe in fate or destiny, but I have always known I would do…