How To Ask Me About My Unique Appearance

There are many reasons why I write: to tell my unfiltered story, to bond with others dealing with craniofacial differences, and to educate those who are not. I have always wished that strangers knew more about Treacher Collins syndrome so they could see me the way I see myself. I think people forget that I…

What Happened When I Took Pride in My Appearance

Ok, I’ll admit it.  When it comes to my appearance, I’m pretty lazy.  Most weekdays I toss my sopping wet hair up into a bun and head out the door to my job.  In my defense, the alarm on my phone usually starts its obnoxious blaring at 4:30 in the morning so I can go…