Inner Warrior

Hello. Hi. It’s me. I know…quite the lengthy absence, right? Let’s just say life happened and I needed a break from spilling my soul and focusing on my syndrome. Oh, and I also wrote a second book during this time, so I was a bit preoccupied with a different kind of writing. I, for one,…

Diary of a Beautiful Disaster Book Launch Recap

Monday, March 27th was a dream come true. It’s when I officially celebrated the launch of Diary of a Beautiful Disaster with the world. (OK, maybe the world is a bit exaggerated, but at least with my friends and family.) I’ve never been a huge enthusiast of public speaking. I don’t mind it. I don’t…

I am in Control

I often wish I were quick-witted. I wish I knew what to say the very moment it needed to be said. For instance, the other night in an elevator a preteen was standing across from me, noticed something weird about my face, and ran over to her friend to whisper in her ear. Her friend…

A Letter to My Mockers

To the two boys in The Fresh Market yesterday who pointed and snickered at me: I was too taken aback to confront you in the moment, but since I’ve had the time to process your asinine behavior, I have something I’d like to say to you. Grow up. You were only about 12 or 13…

An Open Letter to the Mother of a Newborn with Treacher Collins Syndrome

Last night, my cousin tagged me in a Facebook post about a newborn baby with Treacher Collins Syndrome.  When first finding out she was pregnant, the biological mother planned on giving her up for adoption.  A facial anomaly was unknown during the pregnancy and the mother simply couldn’t handle a child at the time.  Adoptive…